Advocacy Update and The Flammable Heart Exhibition
• July 4, 2011 • Leave a CommentPosted in Uncategorized
Tags: #FlamHeART11, #thewalkinggallery, 2wenty, anatomy, art, artist, becca, CAL Undiagnosed, center, Charity, Charles August Long, Community Health Center, Daryll Peirce, David Dreier, david foox, Dennis Kucinich, eidolon films, Ewelina Ferruso, exhibition, Flammable Heart, Flammable Heart Exhibition, FQHC, Free Humanity, gallery, Gats, genetic, genetics, health, health center, heart, howard liebers, IndieMatch, Jessica McCourt, John Carter, Julie Gidion-Smith, Lutheran Family Health Centers, Lutheran HealthCare, marbleroad, Marissa Tamari, medicaid, Melanie Miller, Meredith Towsand, Michael Marsicano, NACHC, National Health Center Week, New York, NYC, paint, philanthropy, physiology, rare disease, rare disorder, regina holliday, Sa'idah Durkee, Sa'idah Zeinab Durkee, Saida Durkee, Sarah Folkman, SIT, SIT Art, Swoon, Teagan White, Teresa Marchetti, The Flammable Heart Exhibition, The Walking Gallery, Undiagnosed Diseases, Vesna Jovanovic
Rare Disease Day 2011: Research, Action and Impact
• February 27, 2011 • Leave a CommentPosted in Uncategorized
Tags: Catherine Calhoun, children's rare disease network, children's rare diseases, e-Patient Dave DeBronkart, Extraordinary Measures, Focal Segmental Glomerulosclerosis, Global Genes Project, Global Rare Diseases Patient Registry, howard liebers, inspire, John Crowley, Julie Gidion-Smith, kakkis everylife foundation, Kidney Disease, marbleroad, National Kidney Foundation, Office of Rare Diseases Research, orphan drugs, PhRMA, rare disease, Rare Disease Legislative Advocates, RDLA, regina holliday, VHL Family Alliance, World Kidney Day 2011, World Rare Disease Day
