Welcome to Marbleroad’s Blog

On February 28, 2009, many organizations around the world celebrated Rare Disease Day 2009. Rare diseases can have a devastating impact on patients, their families, and society as a whole, but it doesn’t have to be that way. For a long time rare diseases have been overlooked as a public health concern, since each disease impacts very few patients. However, more than 7,000 rare diseases and disorders impact more than 30 million people in the United States and more than 60 million people world-wide. While nearly 330 orphan drugs and biologics have been approved for the treatment of rare diseases affecting between 11 and 14 million people according to the Food and Drug Administration, that leaves well over 15 million Americans with rare diseases who have no treatment specific to their disease. Nearly 1 in 10 Americans has a rare disease.

About Me

Program Officer with Community HealthCorps, the nation’s largest health care based AmeriCorps program, whose mission is promoting health care for America’s underserved, while developing tomorrow’s health care workforce. Each year over 600 HealthCorps members serve in community health centers across the country. Community HealthCorps is a $10 million ($6 million federal and $4 million matching support) program with offices in Washington, DC; San Francisco, CA; and New York, NY. Community HealthCorps is part of the National Association of Community Health Centers (NACHC), which is a non-profit organization whose mission is:

“To promote the provision of high quality, comprehensive and affordable health care that is coordinated, culturally and linguistically competent, and community directed for all medically underserved populations.”

In serving its mission, NACHC represents the nation’s network of more than 1,200 Federally Qualified Health Centers (FQHCs) which serve 18 million people in more than 7,000 communities around the country each year.

I earned my MPH from New York Medical College in 2007, and have recently been accepted into their DrPH program.

~ by marbleroad on April 20, 2009.

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