First Discovered in ’95 – EE Impacts 1 in 10,000 Children

Eosinophilic enteropathy (EE) is a complicated digestive system disorder where eosinophils, a type of white blood cell, have an above normal amounts in one or more places of the digestive system or blood.  Eosinophils release toxins that attack foreign allergens such as allergy-triggering foods or airborne allergens. When the body produces too many eosinophils they attack the body causing chronic inflammation, polyps, ulcers, and tissue damage.

This condition can be divided into two types primary and secondary. The primary type can be divided into allergic and non-allergic forms. The allergic type occurs with food allergies and the non-allergic type occurs when no obvious cause can be found to explain the high numbers of eosinophils in the digestive system. Because of this the non-allergic is thought to be evidence that the body is attacking itself and considered to be and autoimmune disorder.

Common symptoms may include: Pain, swelling, skin rash, hives, reflux, choking, difficulty swallowing, nausea, vomiting, loss of appetite, stools containing blood and/or mucus, abdominal cramping, diarrhea, fever, esophageal rings, bowel obstruction, bowel or stomach wall thickening, protein loss, anemia, malabsorbation, developmental delay, bleeding, and several other symptoms that occur in individual cases.

Since there is no cure for eosinophilic enteropathy management of the condition is very important in order to prevent damage to the digestive system caused by high numbers of eosinophils.

Cincinnati Cured Foundation

Extreme Makeover Home Edition – Stockdale Family

ALL 4 CHILDREN HAVE Eosinophilic Enteropathy


American Partnership for Eosinophilic Disorders

Types of EE:

EE is generally classified based on the part of the body affected by eosinophilia (higher-than-normal concentration of eosinophils). Major types of EE include:

* Esophagus: Eosinophilic Esophagitis
* Stomach: Eosinophilic Gastritis
* Small Intestine: Eosinophilic Enteritis
* Stomach and Small Intestine: Eosinophilic Gastroenteritis
* Large Intestine: Eosinophilic Colitis

Frequency of Eosinophilic Disorders:

EE is considered rare, although there are indications that, like other allergic conditions, EE is becoming more common. Studies have generally estimated that between 1 to 4 in 10,000 people may have eosinophilic esophagitis. But one 2007 study, which offered participants a biopsy and physical exam, found that as many as 1% of the population may have sufficient symptoms and test results to be diagnosed with eosinophilic esophagitis. (Some people have mild symptoms and don’t seek medical attention, while others may be misdiagnosed.) Eosinophilic gastrointestinal disorders are rarer than eosinophilic esophagitis.

About.com:Food Allergies

Bet on a Cure Fundraiser
jori-and-brett
Fundraiser this weekend to benefit Brett Grossman and Jori Kodroff – Sunday, May 3, on opening weekend at Arlington Park, to raise money for research on eosinophilic disease. “One Tree Hill” child actor Jackson Brundage will be on hand to sign autographs and take pictures. The fundraiser is run by the Campaign Urging Research for Eosinophilic Disease (CURED), created by Ellyn Kodroff, mother of 16-year-old daughter Jori who suffers from the condition.

“Nine-year-old Brett Grossman has hardly eaten a thing for a year. Because of a rare illness that makes him allergic to nearly all food, he lives on an all-liquid diet. The amino acid drink he must consume is so nasty he refuses to drink it. He has it injected through a feeding tube into his stomach, five times a day. Brett hopes to slowly add foods to his diet, but will have to deal with his condition, eosinophilic enteropathy, throughout his life – unless there is a cure or new treatment.”

When: Noon to 5 p.m. Sunday, May 3
Where: Arlington Park Racecourse, 2200 W. Euclid Ave., Arlington Heights, IL 60005
Admission: $100 for adults and $50 for those under 21. Includes admission to Arlington Park, lunch, an open bar, silent auction and a chance to meet Jackson Brundage.
Tickets and information: CURED Foundation

http://www.dailyherald.com/story/?id=288907&src=120

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~ by marbleroad on April 27, 2009.

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