Partners in Progress Summit

You are cordially invited to participate in a landmark event on Thursday, May 14, 2009, to define the agenda for the nearly 30 million Americans with rare diseases. Hosted by the National Organization for Rare Disorders (NORD), and featuring many of the nation’s leading experts on issues related to orphan product development and access, this event-the Partners in Progress Summit-will take place from 8:30 a.m. to 4:30 p.m. at the historic Willard Intercontinental Hotel in Washington, DC.

David Kessler, MD, JD, former Food and Drug Administration Commissioner, will chair the Summit. Tommy Thompson, former Governor of Wisconsin and U.S. Secretary of Health and Human Services, will deliver the keynote address.

Other speakers will include Michael Astrue, JD, Commissioner of Social Security; Francis Collins, MD, PhD, former Director of the National Human Genome Research Institute; Janet Woodcock, MD, Director of the FDA Center for Drug Evaluation and Research; and other leading experts from government, industry, and public policy sectors.

NORD is convening the Partners in Progress Summit to focus attention on the challenges faced by Americans with rare diseases and to find solutions that promote the development of safe, effective treatments and ensure that patients have access to them.

The morning session of the Summit will focus on innovation in product development. The afternoon session will address challenges related to access. In addition to the presentations, there will be opportunities for audience participation in the discussion.

We anticipate a high level of interest in this program, and space is limited. The event is free. However, it is necessary to pre-register to reserve a seat.

Reservations may be made online at the following location:
Partners in Progress Summit RSVP.

A separate event-NORD’s Annual Gala-will occur on the evening of May 14th at the National Press Club, which is located within walking distance of the Willard Intercontinental. While the Summit is free, the Gala is a fundraising event that makes possible many NORD programs and services. If you would like to receive an invitation to the Gala, please send your name, mailing address and email to

Widely recognized as the primary patient advocacy group associated with rare disease issues, NORD is a unique federation of voluntary health organizations and individuals dedicated to helping people with rare diseases and assisting the organizations that serve them.

National Organization for Rare Disorders

~ by marbleroad on May 4, 2009.

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