Blog Hop 2012 / Rare Disease Day Efforts

• January 30, 2012 • 2 Comments

The CLASS Act and Caregiver Village

• October 17, 2011 • Leave a Comment

NeuroDetour: A Conversation with Melanie Miller

• August 2, 2011 • Leave a Comment

Ideas for Change: A Registry of Registries

• March 19, 2010 • Leave a Comment

Brittle Bones, Tough Spirit

• February 22, 2010 • 8 Comments

Cervical Dystonia

• May 1, 2009 • 1 Comment

Histiocytosis

• April 28, 2009 • Leave a Comment